...bailey's story...

Our story is a story about a MIRACLE. It is not the kind of miracle that is so often shared in Christian circles. We have heard stories about untreatable cancer that disappeared and of a child that was never supposed to walk or talk and is now a healthy adult. These are often the kinds of stories people share with you when you are experiencing difficult circumstances. Stories about the TRAGEDY that was avoided or the near miss that is now in the rear view mirror of life. We value these types of stories and we CELEBRATE them!

Ours was not that kind of story. Our daughter Bailey Hope was born on February 20, 2009. She died on August 13, 2010. The eighteen months in between were horrible and heart wrenching as we experienced our worst fears coming true. We were not rescued FROM heartache and tragedy.

Our miracle was that we were joined IN this journey by friends and family that gave of themselves and by our GOD who held us in unexplainable ways. This is our story. We do not share it to garner pity. There are others who have similar stories. There are so many others who have more tragic stories.

We share our story because it is impossible to talk about our beautiful daughter, without talking about our beautiful God. We must talk about our daughter. We must talk about our God. It is the MIRACLE behind the MIRACLE.

Friday, 27 March 2009

{heather has lexy & matt is holding bailey}

this family is amazing.
if you have spent any time with them,
you know exactly what i mean.
they are real and the pain is indescribably deep.
and yet there are moments of joy that run alongside their grief
as they experience these two precious babies as a
miraculous addition to their family.

the road is a long one ahead of them.
they continue to feel your love and support and are so appreciative.

they have adjusted well to being home.
and with 4 under the age of 4...this is quite an adjustment!

bailey is still not regulating her body temperature yet...
it is something matt and heather are always checking.
her feedings seem to be going well.
she is gaining some weight-slow, but sure.

it's amazing to see these sweet girls side by side...
cuddling next to one another with one big *sigh* once
they finally get settled in.
they love each other.
they need each other...
even at this young, infant stage of life.
they need each other.

**bailey has another eeg on tuesday morning.
please keep this appointment in your prayers.
we are praying for a miracle...that the doctors will
see some improvements as they compare
this new eeg with prior ones.

Tuesday, 24 March 2009

     {lexy has her eyes open and bailey is sleeping}

{bailey is on the left & lexy is on the right in these 2 bottom photos}

Friday, 13 March 2009

A Little Elbow Room!

I'm home with my sister at last!

Bailey came home on Wednesday afternoon and the past few days have gone well. She has been able to maintain an adequate body temperature. Alexis and Bailey had check ups with our pediatrician today and both are gaining weight. Alexis 6lbs at birth is currently weighing 7lbs 3oz and Bailey has gone from 5lbs to 6lbs. The medications Bailey is on have effectively been controlling the seizure activity. She will see three additional doctors (surgeon for a post op follow up, pediatric neurologist, and developmental pediatrician) and will be evaluated to begin services with Early On over the next three weeks. Thank you all for your continued kindness and prayers!

Thursday, 12 March 2009

Bailey is home with her family!

Bailey arrived home on Wednesday!
We will have more details to come...

Wednesday, 11 March 2009


today is going to be filled with meetings for matt, heather & bailey.
many specialists will be in and out...showing
matt and heather the best way to care for bailey once she is home.

yesterday, they worked with bailey's feeding tube.
they were able to do 2 feedings-both went well. 
the doctor wants them to add a supplement to
the breast milk so that bailey would be able to gain weight.
matt and heather are both ready to bring her home...
to unite her with her twin, alexis, and siblings mckenzie & carter!

however, the doctors would like to see bailey regulate her 
own body temperature first.  she is unable to do so right now.
please pray that this next step would happen so that
she would be able to be home with her family!

Monday, 9 March 2009

Monday, March 9

We continue to be so grateful for the prayers, kindness and generosity of so many. Bailey is recovering well from both the surgery to place the feeding tube and the procedure performed to prevent reflux. The feeding (PEG) tube is in place and she is back to receiving full feedings and medications through the PEG tube. The central IV line was removed last night. Another EEG will be done on Tuesday as the neurologists determine if she will be coming home on one or two anti-seizure medications. We hope to be able to bring Bailey home to be with the rest of the family by Wednesday of this week. I am also extremely grateful for the generosity of my employer and several co-workers that will allow me to be at home over the next two weeks as we make this transition.

Friday, 6 March 2009

bailey's surgery

thank you so much for all of your prayers!
bailey's surgery was successful and she is starting
the recovery process.
the doctors and nurses are trying
to make her feel as comfortable as possible.
please pray that they would administer the
correct pain medication so that bailey would
not be in any pain as her body starts to heal from this surgery.
matt and heather will have a more detailed
update later this afternoon.

Wednesday, 4 March 2009

bailey's surgery is on thursday

bailey is scheduled to have surgery tomorrow morning.
they will be placing the feeding tube in her stomach.
she will be on a ventilator and will be sedated all day.
please pray that this surgery will go well
and that bailey would recover quickly.
matt and heather covet our prayers as they walk through this day.

please also pray for the health of matt, heather
and the rest of their family.
when they are sick, they are unable to see bailey...
matt and carter have both been sick
and have had to stay home the last couple days.
prayers for their health are appreciated -
especially during bailey's surgery & recovery time.

it is matt and heather's hope
that they will be able to bring bailey home next week!
thank you for your earnestness
on behalf of the mekkes family.
they feel your support
through your prayers, love & concern for them!

Tuesday, 3 March 2009

hello world!

time to eat?

this is how i am fed right now. 
so far, i have been digesting my food really well!
it takes about 10 minutes for this to go straight to my tummy!


bailey holding mommy's hand
bailey-holding daddy's hand

Sunday, 1 March 2009

mckenzie turns 4 on monday!

{mckenzie is turning 4 this monday!
if you would like to send a card
and need her address...
please email me and i will get that to you right away!}
a quick update...
matt is heading back to work this week.
please keep both heather and matt in your prayers
with this upcoming transition.
also, matt and heather are so grateful
for your cards, hospital visits, meals
and phone calls...
they may not be able to return
many calls right now-but, please know
that each call, each word spoken from your
heart means so much to them.