...bailey's story...

Our story is a story about a MIRACLE. It is not the kind of miracle that is so often shared in Christian circles. We have heard stories about untreatable cancer that disappeared and of a child that was never supposed to walk or talk and is now a healthy adult. These are often the kinds of stories people share with you when you are experiencing difficult circumstances. Stories about the TRAGEDY that was avoided or the near miss that is now in the rear view mirror of life. We value these types of stories and we CELEBRATE them!

Ours was not that kind of story. Our daughter Bailey Hope was born on February 20, 2009. She died on August 13, 2010. The eighteen months in between were horrible and heart wrenching as we experienced our worst fears coming true. We were not rescued FROM heartache and tragedy.

Our miracle was that we were joined IN this journey by friends and family that gave of themselves and by our GOD who held us in unexplainable ways. This is our story. We do not share it to garner pity. There are others who have similar stories. There are so many others who have more tragic stories.

We share our story because it is impossible to talk about our beautiful daughter, without talking about our beautiful God. We must talk about our daughter. We must talk about our God. It is the MIRACLE behind the MIRACLE.

Tuesday, 23 February 2010

Monday, 15 February 2010

Thursday, 4 February 2010



it will be a huge day for us.

we take bailey to be fitted for a special car seat

and wheel chair...tomorrow.

such a painful reality.

one that has been lingering in our minds for quite some time.

and - we begin-tomorrow.

we ask for your prayers as this will be our

first physical step in this direction.

we will also be meeting with our pediatric neurologist.

she will go over bailey's mri in detail with us.

though we are prepared for what she will tell us,

the words are never easy to hear.

our appointment is at 2:15.

we have felt your prayers before, during and after

other difficult appointments...and we both comment that you all must be praying.

it is that clear.

thank you for praying on our behalf.

we have a handful of requests for bailey.

1. that we can get her seizures under control

{she has about 5-6 seizures a day}

2. that we can also get her into some sleep patterns

{bailey sleeps a total of 9-11 hours in a 24 hour period}

3. that our specialists would be able to manage our daughter's pain,

sleep & seizures with the correct medications and dosages.

{she is currently on 9 meds}