...bailey's story...


Our story is a story about a MIRACLE. It is not the kind of miracle that is so often shared in Christian circles. We have heard stories about untreatable cancer that disappeared and of a child that was never supposed to walk or talk and is now a healthy adult. These are often the kinds of stories people share with you when you are experiencing difficult circumstances. Stories about the TRAGEDY that was avoided or the near miss that is now in the rear view mirror of life. We value these types of stories and we CELEBRATE them!

Ours was not that kind of story. Our daughter Bailey Hope was born on February 20, 2009. She died on August 13, 2010. The eighteen months in between were horrible and heart wrenching as we experienced our worst fears coming true. We were not rescued FROM heartache and tragedy.

Our miracle was that we were joined IN this journey by friends and family that gave of themselves and by our GOD who held us in unexplainable ways. This is our story. We do not share it to garner pity. There are others who have similar stories. There are so many others who have more tragic stories.

We share our story because it is impossible to talk about our beautiful daughter, without talking about our beautiful God. We must talk about our daughter. We must talk about our God. It is the MIRACLE behind the MIRACLE.





Friday, 27 March 2009

{heather has lexy & matt is holding bailey}


this family is amazing.
if you have spent any time with them,
you know exactly what i mean.
they are real and the pain is indescribably deep.
and yet there are moments of joy that run alongside their grief
as they experience these two precious babies as a
miraculous addition to their family.

the road is a long one ahead of them.
they continue to feel your love and support and are so appreciative.

they have adjusted well to being home.
and with 4 under the age of 4...this is quite an adjustment!

bailey is still not regulating her body temperature yet...
it is something matt and heather are always checking.
her feedings seem to be going well.
she is gaining some weight-slow, but sure.

it's amazing to see these sweet girls side by side...
cuddling next to one another with one big *sigh* once
they finally get settled in.
they love each other.
they need each other...
even at this young, infant stage of life.
they need each other.

**bailey has another eeg on tuesday morning.
please keep this appointment in your prayers.
we are praying for a miracle...that the doctors will
see some improvements as they compare
this new eeg with prior ones.

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2 comments:

  1. Anonymous27 March 2009 at 12:49

    With all my heart - I love your strength, your peace, your honesty.

    Thank you for sharing your journey with us.

    Every day we all smile with you - and cry with you - as we gaze on the amazingness of your family.

    -Laura

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  2. Diane2 April 2009 at 04:41

    Kathy gave me the address to this site and I wanted to let you know that my thoughts and prayers are with you. Your girls are beautiful, your family is beautiful. May God continue to be your source of strength and comfort.

    Diane Klein

    ReplyDelete

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