...bailey's story...


Our story is a story about a MIRACLE. It is not the kind of miracle that is so often shared in Christian circles. We have heard stories about untreatable cancer that disappeared and of a child that was never supposed to walk or talk and is now a healthy adult. These are often the kinds of stories people share with you when you are experiencing difficult circumstances. Stories about the TRAGEDY that was avoided or the near miss that is now in the rear view mirror of life. We value these types of stories and we CELEBRATE them!

Ours was not that kind of story. Our daughter Bailey Hope was born on February 20, 2009. She died on August 13, 2010. The eighteen months in between were horrible and heart wrenching as we experienced our worst fears coming true. We were not rescued FROM heartache and tragedy.

Our miracle was that we were joined IN this journey by friends and family that gave of themselves and by our GOD who held us in unexplainable ways. This is our story. We do not share it to garner pity. There are others who have similar stories. There are so many others who have more tragic stories.

We share our story because it is impossible to talk about our beautiful daughter, without talking about our beautiful God. We must talk about our daughter. We must talk about our God. It is the MIRACLE behind the MIRACLE.





Wednesday, 11 March 2009

meetings...

today is going to be filled with meetings for matt, heather & bailey.
many specialists will be in and out...showing
matt and heather the best way to care for bailey once she is home.

yesterday, they worked with bailey's feeding tube.
they were able to do 2 feedings-both went well. 
the doctor wants them to add a supplement to
the breast milk so that bailey would be able to gain weight.
  
matt and heather are both ready to bring her home...
to unite her with her twin, alexis, and siblings mckenzie & carter!

however, the doctors would like to see bailey regulate her 
own body temperature first.  she is unable to do so right now.
please pray that this next step would happen so that
she would be able to be home with her family!



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2 comments:

  1. Anonymous11 March 2009 at 13:23

    Oh we will pray - every minute of every hour of every day.

    Hear the roar??

    Love to everyone...
    Laura S

    ReplyDelete
  2. Unknown12 March 2009 at 05:31

    ben & jaren are a part of the roar...
    we love you dear friends.

    ReplyDelete

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