...bailey's story...

Our story is a story about a MIRACLE. It is not the kind of miracle that is so often shared in Christian circles. We have heard stories about untreatable cancer that disappeared and of a child that was never supposed to walk or talk and is now a healthy adult. These are often the kinds of stories people share with you when you are experiencing difficult circumstances. Stories about the TRAGEDY that was avoided or the near miss that is now in the rear view mirror of life. We value these types of stories and we CELEBRATE them!

Ours was not that kind of story. Our daughter Bailey Hope was born on February 20, 2009. She died on August 13, 2010. The eighteen months in between were horrible and heart wrenching as we experienced our worst fears coming true. We were not rescued FROM heartache and tragedy.

Our miracle was that we were joined IN this journey by friends and family that gave of themselves and by our GOD who held us in unexplainable ways. This is our story. We do not share it to garner pity. There are others who have similar stories. There are so many others who have more tragic stories.

We share our story because it is impossible to talk about our beautiful daughter, without talking about our beautiful God. We must talk about our daughter. We must talk about our God. It is the MIRACLE behind the MIRACLE.

Thursday, 29 July 2010

We contiue to wait

Bailey stopped eating 10 days ago and her lungs are again filling with fluid.  The hospice nurses who visit daily feel that it is only a matter of days. She is comfortable most of the time with the help of several medications each hour.  As McKenzie sobbed last night she said, "Daddy my heart hurts."  This succinctly expresses how Heather and I feel.   Although we are worn out with waiting and do not understand why Bailey continues to be in this place we trust in the ONE who does know why.  We depend on him daily. Hourly. Each moment.  Please continue to pray for Bailey's comfort in the waiting, pray for our strength and for our children to have a supernatural sense of understanding and peace.

Friday, 23 July 2010

please pray.

hospice has come to the house every day this week to check on bailey.
they have increased her pain medications significantly.
yet, each day, she seems to grow more and more uncomfortable.
her digestive system is starting to slowly shut down...
she is unable to take any more food into her little body.
her kidneys are also starting to fail.

please pray that in these last hours/days 
that bailey will be free.

free from pain.

free from the constraints of breathing machines and oxygen.
free to be able to eat chocolate cake and blueberries...
like mckenzie so wants her sister to do. 

we continue to pray angels of protection around the mekkes home...

that matt, heather, bailey, alexis, mckenzie and carter
sense His Presence.
Prince of Peace,
our Comforter and King.

Tuesday, 13 July 2010

mekkes meals

just a brief update...

danae set up this site for
all of us.
 this will make it easier to sign up for meals.
thank you for your continued care for this precious family.

Tuesday, 6 July 2010


The days, weeks, and months continue to go by, not quickly but they pass none the less. Each week carries new struggles and difficulties for us and Bailey. Bailey seems to have new complications and issues each week, adding to the complexity of our ultimate goal, which is for her to be comfortable. Bailey’s body is slowly wearing down and she dies a little more every day. Each high that she experiences is not quite as high and each low is much lower and more painful. There are not adequate words to describe what this rollercoaster of anticipatory grieving is like.

Psalm 119:81 “I am worn out waiting for your rescue, but I have put my hope in your word.” We are exhausted and grieved while we wait for Bailey to be free from pain. Please continue to pray for our family as we trust and we wait.