...bailey's story...

Our story is a story about a MIRACLE. It is not the kind of miracle that is so often shared in Christian circles. We have heard stories about untreatable cancer that disappeared and of a child that was never supposed to walk or talk and is now a healthy adult. These are often the kinds of stories people share with you when you are experiencing difficult circumstances. Stories about the TRAGEDY that was avoided or the near miss that is now in the rear view mirror of life. We value these types of stories and we CELEBRATE them!

Ours was not that kind of story. Our daughter Bailey Hope was born on February 20, 2009. She died on August 13, 2010. The eighteen months in between were horrible and heart wrenching as we experienced our worst fears coming true. We were not rescued FROM heartache and tragedy.

Our miracle was that we were joined IN this journey by friends and family that gave of themselves and by our GOD who held us in unexplainable ways. This is our story. We do not share it to garner pity. There are others who have similar stories. There are so many others who have more tragic stories.

We share our story because it is impossible to talk about our beautiful daughter, without talking about our beautiful God. We must talk about our daughter. We must talk about our God. It is the MIRACLE behind the MIRACLE.

Thursday, 27 May 2010

Where are you God?

About a week ago, I was up with Bailey for several hours in the middle of the night. While I sat their holding her in the dark and watching her cry in pain and struggling to breath I found myself getting angry and asking God where he was in all this. I felt like God immediately revealed to me all the ways he has been, is, and will be present. Heather I am in every meal, every phone call, every card, every comment on the blog, every person who has donated their time and expertise to work on the house, every prayer, every gas card. I am also in the pain medications which keep Bailey comfortable, I am in every family member and close friend who has put their life on hold to live life with you during this difficult time. I am in every breath that you take, every dark moment, and every tear that you cry. I am with you always. The most beautiful part is that Matt and I truly feel it.

Our beauiful Bailey is slowly dying in our arms. Her kidneys and other major organs are not functioning well. She is increasingly lethargic, continues to accumulate fluid and her heart rate fluxuates widely. It seems like her time is nearing. It will be both too soon and not soon enough. We trust and we wait.

Saturday, 8 May 2010


it has been another exhaustingly, rough week.

bailey continues to be in more pain.
they have increased her morphine to an hourly dose,
and have changed her feeding schedule to an all day drip...
this seems to allow bailey's digestive system to not
have to work as hard.
she is starting to retain fluids again-
so, medications are changing again to try and make her
more comfortable.
her breathing is very labored as well.

there really are no adequate words
that could depict the exhaustion that
each member of the family is feeling at this time.

it's time to start up meals again...
we would like to start the schedule may 10-
{which happens to be matt's birthday *wink}

if you are able to
make a meal
please email danae gee.

thank you for your
time and energy-
your gift is more than a fantastic meal,
you are giving them time...
so thank you in advance for the gift of time.

**also, a special thank you to those who
sent gas cards...
matt and heather have been so grateful for all that you have given.

each of you is making a difference-with your
time, talents and treasures-
thank you for allowing them to touch
this precious family.