...bailey's story...

Our story is a story about a MIRACLE. It is not the kind of miracle that is so often shared in Christian circles. We have heard stories about untreatable cancer that disappeared and of a child that was never supposed to walk or talk and is now a healthy adult. These are often the kinds of stories people share with you when you are experiencing difficult circumstances. Stories about the TRAGEDY that was avoided or the near miss that is now in the rear view mirror of life. We value these types of stories and we CELEBRATE them!

Ours was not that kind of story. Our daughter Bailey Hope was born on February 20, 2009. She died on August 13, 2010. The eighteen months in between were horrible and heart wrenching as we experienced our worst fears coming true. We were not rescued FROM heartache and tragedy.

Our miracle was that we were joined IN this journey by friends and family that gave of themselves and by our GOD who held us in unexplainable ways. This is our story. We do not share it to garner pity. There are others who have similar stories. There are so many others who have more tragic stories.

We share our story because it is impossible to talk about our beautiful daughter, without talking about our beautiful God. We must talk about our daughter. We must talk about our God. It is the MIRACLE behind the MIRACLE.

Sunday, 4 October 2009

I choose.....BEAUTIFUL!!

I'm not the best communicator but none the less i wanted to share with you what God has been teaching me through my children and especially Bailey during the past weeks.
... On september 14th Bailey had her pediatric opthamology appointment. During our visit the doctor performed a series of tests on Bailey in order to determine how much her vision was affected by her brain injury. Unfortunately Bailey's vision has been greatly affected and she is considered legally blind. Although this wasn't a huge suprise to Matt and I, there is still intense sorrow that goes along with this news. I have felt discouraged, hopeless, angry, and sad that my precious Bailey may never see our faces, or smiles. Bailey will probably never taste ice cream, or eat strawberries, she may never be able to tell me how she is feeling, sing "Jesus loves me," or say "MOM," she will most likely never walk, ride a bike, or dance around with her brother and sisters. However, in the midst of this grief Bailey is giving me a new perspective and is showing me what beautiful really is.
...There are a number of moments throughout my day when it is easy to become frustrated. For instance when Carter and Mckenzie track in mud for the third time that day, or when they spill their spaghetti on the floor, or voice their strong will/opinions (which are typically different from mine) in very loud and passionate ways. Because of Bailey I realize there is beauty in these moments. Carter and McKenzie are able to play in the mud, they are able to eat orally, they can eat things like spaghetti, or ice cream, or strawberries. They are also able to talk and reason and express their opinions. As frustrating as these moments as a mother can be, I would give anything for Bailey to be able to do these things.
...Thank you Bailey for teaching me to see the beauty in things, and for helping me to become a better Mom! You are truly BEAUTIFUL!!