The girls are almost one! As it always does, it seems like both an eternity and an instant since they were born. Alexis continues to be a smiley and happy baby. She is crawling, crusing, and has a vocabulary consisting of one very important word, "Dada." Yes mothers I know its unfair. There is just something about the bond between a father and a daughter or.... maybe its just easier to say.
Bailey has had both an EEG and an MRI in the past few weeks. The EEG was the result of her seizures increasing in both frequency and duration. We continue to try new medications in an attempt to find the right balance to control her epilepsy without resulting in other adverse side effects.
The MRI was completed as she approaches one year of age to allow a comparison of the images with the initial images that were taken shortly after birth. Unfortunately the MRI did not offer any signs of positive development. So we continue to live life and love our brave and strong little Bailey AKA Bo (Alexis is Lu). We pray and long for her to be comfortable and at peace.