Monday, April 6

Last week Tuesday Bailey had another EEG to check for seizure activity. On Friday we met with the Neurologists to discuss the results of the test and further treatment. The EEG did not show any seizure activity during the test so the Neurologist decided to slowly take Bailey off one of her anti-seizure medications. Bailey will always be at an increased risk for seizures and will most likely remain on anti-seizure medications permanently.
This week Bailey has a swallow test. This will tell us if food is going into the stomach or the lungs. Please pray that Bailey is able to swallow correctly and that we could begin feeding therapy to possibly feed her orally.
We can't begin to express our thanks to everyone for the many ways they have surrounded us during this difficult time. We are so grateful to know that we are not alone, God continues to show us love through people like you. Thank you.

{heather has lexy & matt is holding bailey}

this family is amazing.

if you have spent any time with them,

you know exactly what i mean.

they are real and the pain is indescribably deep.

and yet there are moments of joy that run alongside their grief

as they experience these two precious babies as a

miraculous addition to their family.

the road is a long one ahead of them.

they continue to feel your love and support and are so appreciative.

they have adjusted well to being home.

and with 4 under the age of 4...this is quite an adjustment!

bailey is still not regulating her body temperature yet...

it is something matt and heather are always checking.

her feedings seem to be going well.

she is gaining some weight-slow, but sure.

it's amazing to see these sweet girls side by side...

cuddling next to one another with one big *sigh* once

they finally get settled in.

they love each other.

they need each other...

even at this young, infant stage of life.

they need each other.

**bailey has another eeg on tuesday morning.

please keep this appointment in your prayers.

we are praying for a miracle...that the doctors will

see some improvements as they compare

this new eeg with prior ones.

     {lexy has her eyes open and bailey is sleeping}

{bailey is on the left & lexy is on the right in these 2 bottom photos}

A Little Elbow Room!

I'm home with my sister at last!

Bailey came home on Wednesday afternoon and the past few days have gone well. She has been able to maintain an adequate body temperature. Alexis and Bailey had check ups with our pediatrician today and both are gaining weight. Alexis 6lbs at birth is currently weighing 7lbs 3oz and Bailey has gone from 5lbs to 6lbs. The medications Bailey is on have effectively been controlling the seizure activity. She will see three additional doctors (surgeon for a post op follow up, pediatric neurologist, and developmental pediatrician) and will be evaluated to begin services with Early On over the next three weeks. Thank you all for your continued kindness and prayers!

Bailey is home with her family!

Bailey arrived home on Wednesday!
We will have more details to come...

meetings...

today is going to be filled with meetings for matt, heather & bailey.

many specialists will be in and out...showing

matt and heather the best way to care for bailey once she is home.

yesterday, they worked with bailey's feeding tube.

they were able to do 2 feedings-both went well. 

the doctor wants them to add a supplement to

the breast milk so that bailey would be able to gain weight.

  

matt and heather are both ready to bring her home...

to unite her with her twin, alexis, and siblings mckenzie & carter!

however, the doctors would like to see bailey regulate her 

own body temperature first.  she is unable to do so right now.

please pray that this next step would happen so that

she would be able to be home with her family!