...bailey's story...


Our story is a story about a MIRACLE. It is not the kind of miracle that is so often shared in Christian circles. We have heard stories about untreatable cancer that disappeared and of a child that was never supposed to walk or talk and is now a healthy adult. These are often the kinds of stories people share with you when you are experiencing difficult circumstances. Stories about the TRAGEDY that was avoided or the near miss that is now in the rear view mirror of life. We value these types of stories and we CELEBRATE them!

Ours was not that kind of story. Our daughter Bailey Hope was born on February 20, 2009. She died on August 13, 2010. The eighteen months in between were horrible and heart wrenching as we experienced our worst fears coming true. We were not rescued FROM heartache and tragedy.

Our miracle was that we were joined IN this journey by friends and family that gave of themselves and by our GOD who held us in unexplainable ways. This is our story. We do not share it to garner pity. There are others who have similar stories. There are so many others who have more tragic stories.

We share our story because it is impossible to talk about our beautiful daughter, without talking about our beautiful God. We must talk about our daughter. We must talk about our God. It is the MIRACLE behind the MIRACLE.





Tuesday 6 July 2010

rollercoaster

The days, weeks, and months continue to go by, not quickly but they pass none the less. Each week carries new struggles and difficulties for us and Bailey. Bailey seems to have new complications and issues each week, adding to the complexity of our ultimate goal, which is for her to be comfortable. Bailey’s body is slowly wearing down and she dies a little more every day. Each high that she experiences is not quite as high and each low is much lower and more painful. There are not adequate words to describe what this rollercoaster of anticipatory grieving is like.

Psalm 119:81 “I am worn out waiting for your rescue, but I have put my hope in your word.” We are exhausted and grieved while we wait for Bailey to be free from pain. Please continue to pray for our family as we trust and we wait.
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4 comments:

  1. amanda6 July 2010 at 21:01

    We love you and we wait...trusting with you. Not a day goes by without many thoughts of you. It was so good to just be with you this week. Thank you for sweet moments with Bailey that you shared with us. She is one amazing girl....given to one incredible family.

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  2. Anonymous7 July 2010 at 06:58

    This is beyond what any family should endure. The strength and resolve of your faith is amazing. This test would have undone many of us...

    At the end of my day I am ready for a break - the huge sigh of relief and peace that envelopes me once all the whines, cries and "maaaamaaaaaaa"'s are finally quiet. A few hours of ahhhhhhh...

    And you don't get to have that. Your struggle is relentless.

    I cry for you. I ache for you. I pray for you.

    I love you.

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  3. Unknown8 July 2010 at 11:01

    Each day as I walk to work and a new day begins I think of all of you and then I pray. I can not begin to imagine all that each of you experiences daily. I pray for Bailey's life with God and for strength emotionally and physically for all of you. We love you and want you to know we are not forgetting your pain or Bailey's pain. Jo Crooks

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  4. Pepper Blossom12 July 2010 at 08:34

    the waiting is so hard...and watching them struggle is even harder. i know your pain and i am sending cries to our God in heaven to let rest come soon. lydia harrison

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