Where are you God?

About a week ago, I was up with Bailey for several hours in the middle of the night. While I sat their holding her in the dark and watching her cry in pain and struggling to breath I found myself getting angry and asking God where he was in all this. I felt like God immediately revealed to me all the ways he has been, is, and will be present. Heather I am in every meal, every phone call, every card, every comment on the blog, every person who has donated their time and expertise to work on the house, every prayer, every gas card. I am also in the pain medications which keep Bailey comfortable, I am in every family member and close friend who has put their life on hold to live life with you during this difficult time. I am in every breath that you take, every dark moment, and every tear that you cry. I am with you always. The most beautiful part is that Matt and I truly feel it.

Our beauiful Bailey is slowly dying in our arms. Her kidneys and other major organs are not functioning well. She is increasingly lethargic, continues to accumulate fluid and her heart rate fluxuates widely. It seems like her time is nearing. It will be both too soon and not soon enough. We trust and we wait.

meals

it has been another exhaustingly, rough week.

bailey continues to be in more pain.

they have increased her morphine to an hourly dose,

and have changed her feeding schedule to an all day drip...

this seems to allow bailey's digestive system to not

have to work as hard.

she is starting to retain fluids again-

so, medications are changing again to try and make her

more comfortable.

her breathing is very labored as well.

there really are no adequate words

that could depict the exhaustion that

each member of the family is feeling at this time.

it's time to start up meals again...

we would like to start the schedule may 10-

{which happens to be matt's birthday *wink}

if you are able to

make a meal

please email danae gee.

{geedanae@gmail.com}

thank you for your

time and energy-

your gift is more than a fantastic meal,

you are giving them time...

so thank you in advance for the gift of time.

**also, a special thank you to those who

sent gas cards...

matt and heather have been so grateful for all that you have given.

each of you is making a difference-with your

time, talents and treasures-

thank you for allowing them to touch

this precious family.