friday

tomorrow

it will be a huge day for us.

we take bailey to be fitted for a special car seat

and wheel chair...tomorrow.

such a painful reality.

one that has been lingering in our minds for quite some time.

and - we begin-tomorrow.

we ask for your prayers as this will be our

first physical step in this direction.

we will also be meeting with our pediatric neurologist.

she will go over bailey's mri in detail with us.

though we are prepared for what she will tell us,

the words are never easy to hear.

our appointment is at 2:15.

we have felt your prayers before, during and after

other difficult appointments...and we both comment that you all must be praying.

it is that clear.

thank you for praying on our behalf.

we have a handful of requests for bailey.

1. that we can get her seizures under control

{she has about 5-6 seizures a day}

2. that we can also get her into some sleep patterns

{bailey sleeps a total of 9-11 hours in a 24 hour period}

3. that our specialists would be able to manage our daughter's pain,

sleep & seizures with the correct medications and dosages.

{she is currently on 9 meds}