It has been such a long time since our last post and yet it seems like only yesturday. I have struggled to know what to write. This last month has held some of our darkest days, and also some of our brightest. Bailey's pain with feeds progressed to almost every one and was very extensive. We have tried a few different medications to help control the pain level and we feel like we have found something now that may be helping. We are so incredibly grateful that Bailey is more relaxed and comfortable. We still have hard days but have had a few good days lately. We are learning not to take the good days for granted, and continually praise God for them.
Life has been very busy with appointments lately. Bailey has feeding therapy twice a week for the next 12 weeks, and has also started her physical therapy, and occupational therapy with the Early On program. As of now, they have showed us different excercises to do with Bailey at home to help her progress, and to reach her potential. Please pray that Matt and I would have chunks of time during the day to do these different excercises with her.
We wanted to share some of our "bright" moments as well. Lexi is cooing a lot and always has a smile on her face - her middle name, JOY is so perfect for her. Bailey has also cooed a few times and I have seen her smile once, which has been such a gift. I continue to hold on to HOPE that we will have many more smiles and a lot more cooing.
In closing, I just wanted to share one statement with you that has been such a source of truth and comfort in the past few weeks. Jesus Christ is not my security against the storms of life, but He is my perfect security in the storms. He has never promised me an easy passage, only a safe landing.
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matt and heather,
ReplyDeletethank you for your hearts...sharing your joy and your sorrows takes so much strength and courage. we pray for you daily and will continue to pray for these specific requests. olivia prays for bailey at breakfast, lunch, dinner and bedtime. God has given her a true heart for her bailey. it is precious to hear her faith as she continues to pray for healing. it is her faith that reminds me to do the same. we are hanging on to a Hope for precious bailey that far exceeds our own understanding. one of olivia's songs from church- our God is so strong, so big & so mighty...there's nothing our God cannot do! It is His strength that we cling to and will continue to ask Him to provide for you and your sparrows. much love to you friends.
ben, jaren & o
"He has never promised me an easy passage - He is my strength in the storms..." Its almost unbearable to comprehend the suffering that must be endured before we realize that as hard as we pray for healing, for health, for miracles...our true blessing is the strength that He provides. We might never come to understand the reasons for suffering - but we are ever so fortunate to have Him to lean on.
ReplyDeleteWe think of you every day.
Love - Laura Steenwyk
Heather,
ReplyDeleteThank you for your poss... i know it must not be easy to find time to update all of use in the blog world but I look forward to your new posts so I know how you and your family are doing. Your last quote really touched me... My heart feels storms still... and knowing how that storm was and is in my life.... it makes me wish I could take your storm and calm it for you. But since I can not I will pray to the one who can. I would like to bring you another meal... is there a time that I could do that? Maybe I will try another gluten free cookie :) Let me know... my email is mrsdevries828@yahoo.com
Thinking of you and prayer for you