...bailey's story...


Our story is a story about a MIRACLE. It is not the kind of miracle that is so often shared in Christian circles. We have heard stories about untreatable cancer that disappeared and of a child that was never supposed to walk or talk and is now a healthy adult. These are often the kinds of stories people share with you when you are experiencing difficult circumstances. Stories about the TRAGEDY that was avoided or the near miss that is now in the rear view mirror of life. We value these types of stories and we CELEBRATE them!

Ours was not that kind of story. Our daughter Bailey Hope was born on February 20, 2009. She died on August 13, 2010. The eighteen months in between were horrible and heart wrenching as we experienced our worst fears coming true. We were not rescued FROM heartache and tragedy.

Our miracle was that we were joined IN this journey by friends and family that gave of themselves and by our GOD who held us in unexplainable ways. This is our story. We do not share it to garner pity. There are others who have similar stories. There are so many others who have more tragic stories.

We share our story because it is impossible to talk about our beautiful daughter, without talking about our beautiful God. We must talk about our daughter. We must talk about our God. It is the MIRACLE behind the MIRACLE.





Monday, 9 March 2009

Monday, March 9


We continue to be so grateful for the prayers, kindness and generosity of so many. Bailey is recovering well from both the surgery to place the feeding tube and the procedure performed to prevent reflux. The feeding (PEG) tube is in place and she is back to receiving full feedings and medications through the PEG tube. The central IV line was removed last night. Another EEG will be done on Tuesday as the neurologists determine if she will be coming home on one or two anti-seizure medications. We hope to be able to bring Bailey home to be with the rest of the family by Wednesday of this week. I am also extremely grateful for the generosity of my employer and several co-workers that will allow me to be at home over the next two weeks as we make this transition.
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2 comments:

  1. Unknown9 March 2009 at 19:42

    Matt and Heather,
    Thank you for the updates on Bailey--God seems to have laid that little pumpkin on my heart and mind daily, and I continue to pray for her and for all of your family. It is so beautiful to see the pictures of your loving arms with Bailey and Alexis. It has been very hard to see lives over here in Bangladesh that have been abandoned from their families because of health difficulties. For certain, the Spirit of God is lacking here for there to be such a response. I am so glad to see your brothers/sisters in Christ helping with your needs--I'm sure that has been such a blessing for you. We will continue to uplift you all in prayer*

    Love in Christ,

    rhonda and jesse nash

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  2. Anonymous10 March 2009 at 08:24

    Heather & Matt -
    I love the music on this site. Fills me with peace and hope....
    Bailey is lucky to have you as parents, so full of love...
    Its wonderful news that she is going to go home -
    We'll continue to pray for healing - and for strength.
    Hugs,
    Laura Steenwyk

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