...bailey's story...


Our story is a story about a MIRACLE. It is not the kind of miracle that is so often shared in Christian circles. We have heard stories about untreatable cancer that disappeared and of a child that was never supposed to walk or talk and is now a healthy adult. These are often the kinds of stories people share with you when you are experiencing difficult circumstances. Stories about the TRAGEDY that was avoided or the near miss that is now in the rear view mirror of life. We value these types of stories and we CELEBRATE them!

Ours was not that kind of story. Our daughter Bailey Hope was born on February 20, 2009. She died on August 13, 2010. The eighteen months in between were horrible and heart wrenching as we experienced our worst fears coming true. We were not rescued FROM heartache and tragedy.

Our miracle was that we were joined IN this journey by friends and family that gave of themselves and by our GOD who held us in unexplainable ways. This is our story. We do not share it to garner pity. There are others who have similar stories. There are so many others who have more tragic stories.

We share our story because it is impossible to talk about our beautiful daughter, without talking about our beautiful God. We must talk about our daughter. We must talk about our God. It is the MIRACLE behind the MIRACLE.





Friday, 13 March 2009

I'm home with my sister at last!


Bailey came home on Wednesday afternoon and the past few days have gone well. She has been able to maintain an adequate body temperature. Alexis and Bailey had check ups with our pediatrician today and both are gaining weight. Alexis 6lbs at birth is currently weighing 7lbs 3oz and Bailey has gone from 5lbs to 6lbs. The medications Bailey is on have effectively been controlling the seizure activity. She will see three additional doctors (surgeon for a post op follow up, pediatric neurologist, and developmental pediatrician) and will be evaluated to begin services with Early On over the next three weeks. Thank you all for your continued kindness and prayers!
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1 comment:

  1. Anonymous18 March 2009 at 12:04

    So - how do the girls react to being back together? Which is which in the pictures?
    Every day I think of all of you and how you are getting along taking care of - HOLY COW - four kids!!

    Lots of prayers for everyone -
    Laura

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