The girls are almost one! As it always does, it seems like both an eternity and an instant since they were born. Alexis continues to be a smiley and happy baby. She is crawling, crusing, and has a vocabulary consisting of one very important word, "Dada." Yes mothers I know its unfair. There is just something about the bond between a father and a daughter or.... maybe its just easier to say.
Bailey has had both an EEG and an MRI in the past few weeks. The EEG was the result of her seizures increasing in both frequency and duration. We continue to try new medications in an attempt to find the right balance to control her epilepsy without resulting in other adverse side effects.
The MRI was completed as she approaches one year of age to allow a comparison of the images with the initial images that were taken shortly after birth. Unfortunately the MRI did not offer any signs of positive development. So we continue to live life and love our brave and strong little Bailey AKA Bo (Alexis is Lu). We pray and long for her to be comfortable and at peace.
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Heather - It must be terribly difficult to commit to writing the reality you face daily. I think of you every day - especially now that Zoe is here. Because of your honesty when writing your blog - our children, the beauty of their lives - these are gifts we will never take for granted.
ReplyDeleteZoe too had her cord around her neck at birth - so tight that her little face was solid blue. I held my breath waiting for her little scream - which when it came was more like a chirp, but it did finally come. And now she's a week old - gorgeous and thriving. What a GIFT!!
I relayed to Dr. B and C your message of thankfulness. Both were humbled, deeply moved - you could see their bodies soften with memories of you and Matt. I said how thankful we all are of the sacrifices they make. Dr. C said "we do it because we hope in the fight for life that we can make even the smallest difference".
Love to you all -
Laura