...bailey's story...


Our story is a story about a MIRACLE. It is not the kind of miracle that is so often shared in Christian circles. We have heard stories about untreatable cancer that disappeared and of a child that was never supposed to walk or talk and is now a healthy adult. These are often the kinds of stories people share with you when you are experiencing difficult circumstances. Stories about the TRAGEDY that was avoided or the near miss that is now in the rear view mirror of life. We value these types of stories and we CELEBRATE them!

Ours was not that kind of story. Our daughter Bailey Hope was born on February 20, 2009. She died on August 13, 2010. The eighteen months in between were horrible and heart wrenching as we experienced our worst fears coming true. We were not rescued FROM heartache and tragedy.

Our miracle was that we were joined IN this journey by friends and family that gave of themselves and by our GOD who held us in unexplainable ways. This is our story. We do not share it to garner pity. There are others who have similar stories. There are so many others who have more tragic stories.

We share our story because it is impossible to talk about our beautiful daughter, without talking about our beautiful God. We must talk about our daughter. We must talk about our God. It is the MIRACLE behind the MIRACLE.





Friday, 1 May 2009

Prime Time

Bailey has been increasingly uncomfortable each night from about eight o'clock until sometime in the night :) On a good night this sometime is around 11:00. On a bad night it is not :o By increasingly uncomfortable I mean screaming and crying for hours at a time and having traces of blood in her stomach. We are working with several different care providers on discovering what contributes to her discomfort. Possible culprits include medications she is on, milk allergies, something related to the placement of the feeding tube, and/or general colic. Because of a sugical procedure reflux is not a likely canidate for the problem. Bailey, like most two-month-olds, has not been cooperative in verbalizing what exactly the problem is ;)

Yes we have tried car rides (which sometimes helps), putting her in the car seat near or on the dryer, in the swing with various "white noise" and countless other things. Please remember us during the "prime time hours."
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7 comments:

  1. Anonymous3 May 2009 at 18:57

    Poor pumpkin!! What does Alexis think of it all? Mars had terrible colic & reflux. Made the first several months just miserable for all involved. We found some success with soy formula and probiotics. The probiotics helped quite a bit - he had been on so many antibiotics that his digestion was shot. Oh yeah - the other thing that worked was ear plugs :) Might be worth investigating.... the probiotics I mean. :-) Love to all - Laura

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  2. The Traynors3 May 2009 at 19:57

    Poor parents! Big hugs and love to you all. May God find a way for all of you to get some needed rest and comfort.

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  3. Trisha Nelson6 May 2009 at 16:43

    Thanks for the updates. I will continue to pray for everyone, especially Bailey during her 'uncomfortable' time of the evening. May God give you peace and strength! Much Love, Trisha

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  4. Anonymous9 May 2009 at 19:40

    !!!!!!!HAPPY MOTHER'S DAY!!!!!!

    Hang in - we are all praying for you!!

    -Laura

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  5. paul1 June 2009 at 17:19

    I had no idea what you guys have been through. Paul and I and our family are praying for you.

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  6. Anonymous2 June 2009 at 05:38

    Thinking of you every day -
    Would love to see pictures if you have a chance...
    -Laura

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  7. Sarah Cosby9 June 2009 at 21:17

    Heather~
    It was so good to run into you tonight. Michelle told me about your recent journey and sent me this link. I can't seem to get you off my mind-- I know...there are no words to convey.. I just have been very moved by your beutiful beautiful babies.. I can't seem to stop crying as I read your story...the strength of your raw faith is so obvious...and you are such an amazing and beautiful woman of grace... I thought you were amazing before... and you continue to shine with your strong family all around you-- I just would love to offer to you and your family whatever I can... meals ... help...please know how sincerely I would love to help if i can-- if it's helpful -- if you are set-- just know I will be praying... and believing.. and thinking of you often. sarah
    sarahsu_cosby@hotmail.com

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