...bailey's story...


Our story is a story about a MIRACLE. It is not the kind of miracle that is so often shared in Christian circles. We have heard stories about untreatable cancer that disappeared and of a child that was never supposed to walk or talk and is now a healthy adult. These are often the kinds of stories people share with you when you are experiencing difficult circumstances. Stories about the TRAGEDY that was avoided or the near miss that is now in the rear view mirror of life. We value these types of stories and we CELEBRATE them!

Ours was not that kind of story. Our daughter Bailey Hope was born on February 20, 2009. She died on August 13, 2010. The eighteen months in between were horrible and heart wrenching as we experienced our worst fears coming true. We were not rescued FROM heartache and tragedy.

Our miracle was that we were joined IN this journey by friends and family that gave of themselves and by our GOD who held us in unexplainable ways. This is our story. We do not share it to garner pity. There are others who have similar stories. There are so many others who have more tragic stories.

We share our story because it is impossible to talk about our beautiful daughter, without talking about our beautiful God. We must talk about our daughter. We must talk about our God. It is the MIRACLE behind the MIRACLE.





Monday, 6 April 2009

Monday, April 6

Last week Tuesday Bailey had another EEG to check for seizure activity. On Friday we met with the Neurologists to discuss the results of the test and further treatment. The EEG did not show any seizure activity during the test so the Neurologist decided to slowly take Bailey off one of her anti-seizure medications. Bailey will always be at an increased risk for seizures and will most likely remain on anti-seizure medications permanently.
This week Bailey has a swallow test. This will tell us if food is going into the stomach or the lungs. Please pray that Bailey is able to swallow correctly and that we could begin feeding therapy to possibly feed her orally.
We can't begin to express our thanks to everyone for the many ways they have surrounded us during this difficult time. We are so grateful to know that we are not alone, God continues to show us love through people like you. Thank you.
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4 comments:

  1. Anonymous7 April 2009 at 09:51

    I hold my breath every time I log onto your site.

    Regardless of our ability to be with you in person, we are all with you in prayer and spirit.

    Take this as my virtual hug.

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  2. Calli7 April 2009 at 14:32

    i feel the same way, holding my breath every time I check this out (which is usually at least once a day).
    You are always in my thoughts and prayers. Thank you for being the incredibly strong people that you are. I truly admire you both, more than you realize.

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  3. suzq32818 April 2009 at 06:04

    the girls are so beautiful and I can't wait to meeth your amazing gifts in person. You're in my prayers daily. In the hard days remember to lean on Him and know that you are so loved by Him and all of us who can't be with you. "In this world you will have great tribulation, but take hear I have overcome the world!" John 16:33

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  4. Anonymous29 April 2009 at 18:51

    Its been three weeks since you updated the blog - but I bet to you it feels like yesterday. How are you hanging in? Are you getting the help you need? We are all praying for you - and many of us have extra hands that we can lend if you need it. Please let us know in what ways your earthly followers can support you...

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