We contiue to wait

Bailey stopped eating 10 days ago and her lungs are again filling with fluid.  The hospice nurses who visit daily feel that it is only a matter of days. She is comfortable most of the time with the help of several medications each hour.  As McKenzie sobbed last night she said, "Daddy my heart hurts."  This succinctly expresses how Heather and I feel.   Although we are worn out with waiting and do not understand why Bailey continues to be in this place we trust in the ONE who does know why.  We depend on him daily. Hourly. Each moment.  Please continue to pray for Bailey's comfort in the waiting, pray for our strength and for our children to have a supernatural sense of understanding and peace.

please pray.

hospice has come to the house every day this week to check on bailey.

they have increased her pain medications significantly.

yet, each day, she seems to grow more and more uncomfortable.

her digestive system is starting to slowly shut down...

she is unable to take any more food into her little body.

her kidneys are also starting to fail.

please pray that in these last hours/days 

that bailey will be free.

free from pain.

free from the constraints of breathing machines and oxygen.

free to be able to eat chocolate cake and blueberries...

like mckenzie so wants her sister to do. 

we continue to pray angels of protection around the mekkes home...

that matt, heather, bailey, alexis, mckenzie and carter

sense His Presence.

our

Prince of Peace,

our Comforter and King.

mekkes meals

take them a meal

just a brief update...

danae set up this site for

all of us.

 this will make it easier to sign up for meals.

thank you for your continued care for this precious family.

rollercoaster

The days, weeks, and months continue to go by, not quickly but they pass none the less. Each week carries new struggles and difficulties for us and Bailey. Bailey seems to have new complications and issues each week, adding to the complexity of our ultimate goal, which is for her to be comfortable. Bailey’s body is slowly wearing down and she dies a little more every day. Each high that she experiences is not quite as high and each low is much lower and more painful. There are not adequate words to describe what this rollercoaster of anticipatory grieving is like.

Psalm 119:81 “I am worn out waiting for your rescue, but I have put my hope in your word.” We are exhausted and grieved while we wait for Bailey to be free from pain. Please continue to pray for our family as we trust and we wait.

...as we wait upon the Lord

Strength will rise as we wait upon the Lord
We will wait upon the Lord
We will wait upon the Lord

Our God, You reign forever
Our hope, our Strong Deliverer
You are the everlasting God
The everlasting God
You do not faint
You won't grow weary
Our God, You reign forever
Our hope, our Strong Deliverer

You are the everlasting God
The everlasting God
You do not faint
You won't grow weary
You're the defender of the weak
You comfort those in need
You lift us up on wings like eagles

Everlasting God by Chris Tomlin

Where are you God?

About a week ago, I was up with Bailey for several hours in the middle of the night. While I sat their holding her in the dark and watching her cry in pain and struggling to breath I found myself getting angry and asking God where he was in all this. I felt like God immediately revealed to me all the ways he has been, is, and will be present. Heather I am in every meal, every phone call, every card, every comment on the blog, every person who has donated their time and expertise to work on the house, every prayer, every gas card. I am also in the pain medications which keep Bailey comfortable, I am in every family member and close friend who has put their life on hold to live life with you during this difficult time. I am in every breath that you take, every dark moment, and every tear that you cry. I am with you always. The most beautiful part is that Matt and I truly feel it.

Our beauiful Bailey is slowly dying in our arms. Her kidneys and other major organs are not functioning well. She is increasingly lethargic, continues to accumulate fluid and her heart rate fluxuates widely. It seems like her time is nearing. It will be both too soon and not soon enough. We trust and we wait.

meals

it has been another exhaustingly, rough week.

bailey continues to be in more pain.

they have increased her morphine to an hourly dose,

and have changed her feeding schedule to an all day drip...

this seems to allow bailey's digestive system to not

have to work as hard.

she is starting to retain fluids again-

so, medications are changing again to try and make her

more comfortable.

her breathing is very labored as well.

there really are no adequate words

that could depict the exhaustion that

each member of the family is feeling at this time.

it's time to start up meals again...

we would like to start the schedule may 10-

{which happens to be matt's birthday *wink}

if you are able to

make a meal

please email danae gee.

{geedanae@gmail.com}

thank you for your

time and energy-

your gift is more than a fantastic meal,

you are giving them time...

so thank you in advance for the gift of time.

**also, a special thank you to those who

sent gas cards...

matt and heather have been so grateful for all that you have given.

each of you is making a difference-with your

time, talents and treasures-

thank you for allowing them to touch

this precious family.